Valerie Foley

Great, great information about sleep and sleep issues

In Parent issues on January 1, 2013 at 11:18 am

Great, great information about sleep and sleep issues

Today, I was random googling about epilepsy, because it’s new in our lives and there’s so much to learn.

Billy’s epilepsy first showed itself behaviourally – intense onset OCD, high anxiety, followed within days by atypical tonic-clonic events in light sleep. By the time we had an EEG (a long one, I don’t even count a short EEG as even remotely useful, except maybe to get your child used to having the electrodes stuck to their head) he was showing constant intense sub-clinical discharges in his right frontal lobe. These intensified when he was falling asleep and waking up. They progressed to generalised tonic-clonic seizures in the same sleep phases. He takes Epilim (Depakote if you are in the USA, sodium valproate if you are a chemist) which gets mixed reviews from us (more about that another day).

So, even though we have been blessed with a sleeper, his sleep is now invaded by epilepsy. Hence my google ‘autism, epilepsy, sleep’, and the emergence of this excellent article.

PS. I subscribe to Autism File, and have the ultimate respect for Polly Tommey and her team. If you are unfamiliar with The Autism File story… read this –, and then click around the site.

It’s pretty inspiring.

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